My child has, or may have, a disability
My baby may have a disability
Being told there is a possibility that your growing baby may have a medical condition, disability or genetic disorder is very difficult news to hear and you will be wondering what happens next.
The National Childbirth Trust who support parents from pregnancy to their child’s second birthday, have put together some frequently asked questions as well as some useful resources that may help you.
For additional support from other parents and carers who understand what you may be feeling and concerns you may have, you can get in touch with Wakefield Parent Carer Forum.
My child has a disability
If you child is diagnosed with a disability, or is awaiting diagnosis, it can be difficult to see what the next steps may be and how to support your child as they grow older.
NHS Choices has also put together guidance about caring for a child with complex needs as well as some tips for caring for a disabled child.
For additional support from other parents and carers who understand what you may be feeling and any concerns you may have, you can get in touch with Wakefield Parent Carer Forum. It is important that as a parent or carer of a disabled child you also take time to look after yourself. Carer’s Wakefield and District have groups and courses available for you take part in.
If you have other children without a disability, you can access support from groups like Sibs. Sibs is a national charity supporting brothers and sisters of disabled children. It has lots of information and support available for parents, carers and professionals who work with families.
Sibs offers an online forum for adult siblings as well as YoungSibs, Youngsibs is designed for children and young people aged 6 to 17 years.
Contact provides an A-Z of Medical Conditions. Offering information about sypmtoms and possible treatments. It also includes details for support groups that may be able to help you. There is also information and advice for parents caring for a child with a rare condition.